Wisconsin Regional Centers for Children and Youth with Special Health Care Needs (CYSHCN)
provide a system of information, referral and follow-up services so all families of children and youth with special health care needs and providers have access to complete and accurate information. Visit us at: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Parent to Parent of Wisconsin
provides parent support to parents of children with special needs through a one-to-one connection with another parent who has similar experience and who knows first hand about the feelings and reality that comes with having a child with special needs. Visit us at: p2pwi.org
Wisconsin First Step
is a statewide Information and Referral (I&R) hotline that serves families with children who have special health care needs and professionals. Wisconsin First Step has two components. It serves as the central directory for Wisconsin’s Birth To 3 Program. This statewide program provides supports and services to infants and toddlers with developmental disabilities and their families. Another component to First Step is to serve as the Information & Referral hotline for the Wisconsin Regional Centers. In addition to providing referrals to disability-related resources, parent specialists provide direct linkages to the closest CYSHCN Regional Center. A health and human services database of disability-related resources has been developed and is regularly updated. Visit us at: www.mch-hotlines.org
Advocacy and Benefits Counseling for Health
is a Wisconsin-based nonprofit public interest law firm dedicated to ensuring health care access for children and families, particularly those with special needs or who are at risk. ABC for Health’s mission is to provide health care consumers with the information, advocacy tools, legal services, and expert support they need to navigate through America’s complex and confusing health care financing system. Visit us at: www.abcforhealth.org
Family Voices of Wisconsin
is a statewide non-profit focused on supporting the voice of families in decision-making, leadership and systems change roles. FVW provides information, training and support around health care and community services to families throughout our state and supports essential partnerships between families and professionals. FVW’s well received Did You Know? Now You Know! training series is offered statewide. Visit us at: wfvofwi.org/
The Great Lakes Inter-Tribal Council’s Children/Youth with Special Health Care Needs
(CYSHCN) Project is a program which assists in providing information, resources, professional support, advocacy, parental training/ education, social service coordination and assistance and aid in resolving specific concerns or needs regarding a child’s disability to Native American families in Tribal communities in rural northern Wisconsin. The goal of the project is for each Native American child with a special health care need to obtain culturally appropriate health care service coordination, to include early identification, a complete developmental and medical assessment and to have access to primary health care services. Visit us at: http://www.glitc.org/programs/cyshcn/
Threshold is a state initiative for families with children and youth with special health care needs. Trained staff partner with families to complete an application for four WI Children’s Long-Term Support (CLTS) programs. Currently, Threshold is available to families in Racine, Walworth, Kenosha, and Waukesha Counties. Families with children who have physical, developmental or behavioral needs and live in one of these counties can contact one of the numbers below to apply for the following CLTS programs:
Families in Racine, Walworth, or Kenosha County should call (toll free) 866-710-4054.
Families in Waukesha County should call 414-266-6151.
Threshold is supported by the Department of Health Services-Bureau of Long Term Support.
Visit us at: http://www.compasswisconsin.org/
A.L.A.S- Alianza Latina Aplicando Soluciones (Latino Alliance Applying Solutions)
Alianza Latina Aplicando Soluciones is a non-profit organization dedicated to promoting the independence of families of children and youth with diverse abilities in Wisconsin by providing educational workshops, parent support groups, family events, community building activities, and service referrals.
Visit us at: http://www.alianzalatinawi.org/ALAS.htm
Contact us: Phone – 414-643-0022
Toll Free – 866-249-5055
Fax – 414-643-0023
Email – Alasinc@Alianzalatinawi.org
We collaborate with these two entities that, among other things, put togethre a Genetics in Wisconsin website which is a great resource that gives health professionals, patients, and families access to genetics information and resourses. There are helpful links to other sites, as well as family stories that illustrate how Wisconsin genetics services benefit patients and families.
Visit the Genetics in Wisconsin Website here: http://geneticsinwisconsin.wisc.edu/
Wisconsin Statewide Medical Home Initiative (WiSMHI)
The Wisconsin Statewide Medical Home Initiative (WiSMHI) promotes the concepts of medical home to primary care clinicians, families, and service providers throughout Wisconsin. Training, technical assistance and resources are provided to support medical home implementation with a focus on the topics below.
Visit us at: http://www.wismhi.org/WiSMHI-home
Youth Health Transition Initiative
The Youth Health Transition Initiative supports youth, families and providers around transition from pediatric to adult health.
Visit us at: http://healthtransitionwi.org/
Wisconsin NewBorn Screening Program
The Wisconsin NewBorn Screening Program identifies babies through hearing, blood, and pulse oximetry testing who may have a condition that needs early treatment.
Women, Infants, and Children (WIC) CYSHCN/Birth Defects: Nourishing Special Needs
A network of WIC dietitians and nutritionists trained in identifying and caring for the nutritional needs and feeding challenges of CYSHCN.